Care Pathway
This illustration represents the many practical aspects of rare diseases for patients and their families (appointments with different doctors and surgeons, meals, transportation and tasks management for parents, as well as the child's experience at school).
Project carried out in collaboration with members of Filière Santé Maladies Rares de la tête, du cou et des dents (TETECOU), Hôpital Necker-Enfants Malades, Paris.
